Patient-in-the-loop data are healthcare data that are shared in real-time with the patient (or their informal caregivers) just as they are with the professional members of the patient’s care team. They promote patient empowerment, transparency, and shared decision making.

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As the population ages and the demands on the healthcare system increase, there is growing recognition of the value of empowering patients to play a more informed and active role in their care. But, the vast majority of patients, particularly in Quebec, do not have direct or real-time access to their healthcare data. As such, most patients are second-class members of their own care teams and unable to play a fully-informed and active role in their care.

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Patient-in-the-loop data are designed to ensure that patients are always in the loop about their own health and healthcare and are empowered to make informed decisions.

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